Let’s Begin. Again.

White cherry blossom on branch in spring.

I’ve written 20 partial posts and deleted them all. My world got smaller as my health deteriorated over the last year. Cognitively, I’m playing catch up and while I can recite what my oxygen levels have been for the last week, I can’t remember a single line of poetry, except for a little Wordsworth:

I wandered lonely as a cloud.

Perhaps I return here because I feel a peculiar kind of loneliness. There is an isolation borne of chronic health conditions. I feel myself tense up when someone asks How are you? So tired of focusing on my health and ongoing issues, I’ve learned to mutter I’m fine.

I’m not fine, but I’m okay. And what is going on with me is survivable, so perhaps there is no need for a dramatic re-entry into my life. You were gone?

Red robot figure fixing itself.

The tumbling down started last year when frequent hot flashes, cognitive fog, and insomnia started. Hormones, amiright? By the time I went the HRT route and got those symptoms under control, I got hit with tinnitus – a loud, high squeal at about 8000 Hz, sometimes manic cicadas, but always on. I went through some cognitive behavioral therapy to learn how to background the noise, and to learn how to sleep and work with it. Got that under control. Then got diagnosed with sleep apnea. I’ve spent the last month getting intimate with a breath robot (CPAP therapy).

If you read this and think holy shit, this person is a mess, I would swear to you that up until last year, I felt pretty okay. My chief indicators that I’m doing alright in my life have always been writing and running. If I’m doing those two things, I’m alright. They are activities layered in dust now. I finally started strength training again last week, but I’ve lost a lot of ground. And, as you can read here, my writing isn’t exactly hitting a bestselling list anytime soon.

Paper doll cutouts on a turquoise background.

Whatever image one might have of oneself, there will be a time when all will be brought into question. I’ve been humbled and demoralized. On the upside, I’ve gained greater empathy for people who suffer much more than I with isolating conditions and visible/invisible disabilities. That’s how it always goes – we don’t often feel in our bones for other people until we suffer ourselves. Humans, geesh.

For me there is only this: Begin again. And again. And again. I am adapting to the new guidelines and rules in my life that keep me sane and healthy, as most of us do. I’m going for a short run tomorrow and writing here. It’s a bit lumpy and unimpressive but life, like writing, is always a draft in revision.

My Misery Brought a Plus One

I was almost there. The sadness of loss began lifting and dissipating with the arrival of the spring sun. I acted like a grownup and went to the doctor to deal with my health anxieties. Spring break ended and my family returned to their respective daytime activities. The deck was cleared for productive writing, invigorating workouts, and getting my garden planned. It was a glorious five minutes.

canstockphoto46418801I’m writing here, shortly before I render myself unconscious with an ungodly amount of pharmaceuticals. I’m down and out with a head and chest cold which makes me dizzy and susceptible to laughing at my own jokes. It might be that I already hit the Nyquil. Nowhere on the warning label does it say I should not operate a keyboard.

This is life, as they say. They are assholes. It may be life, but in the moment, when my head feels like it has been split open and my voice is a croak interrupted by paroxysms of coughing, it feels like it is not a good life. It will pass they say (they can now shut their pie holes and return to bad faith arguments land).

canstockphoto181672.jpgSurliness is often my go-to place when tired, sick, hungry, breathing. I have made the execrable error of filling my life with positive people – all of whom I must avoid when surly. I like to let my surliness and self-pity run its natural course, without the shame of it could be worse quips being blithely tossed my way. Unnatural stoppage could turn my feral surliness into something worse – a reasonable, circumspect person who always seems like they have their shit together. That would be wholly unnatural for me.

For those of you who regularly read my posts, I am going to be okay. I received my biopsy result in which the doctor was playing fast and loose with the English language. It essentially said You don’t have cancer. Yet. See you next year. Precancerous cells have put me on a watch list. There are some minor lifestyle changes I can make to prevent further damage. And believe me, I’m making them. If you reach a point in your life when people need to regularly shove tiny cameras in your orifices, you make the damn changes.

Much of the joy has been drained from my life – if my life were all about eating delicious canstockphoto56388854.jpgfood. Which, to be fair, much of it was. Now I must get my jollies from smoothies with raw ginger and greens. No more spicy Mexican, onion-laden Greek, tomato-filled Italian food. I sleep on a wedge pillow, don’t eat three hours before bedtime, drink gallons of water, and stare morosely out the kitchen window, while washing another bowl of lawn clippings for my next meal.

I suppose I should be grateful that I was scared into better health. I’ve lost some weight, don’t experience heartburn, and will likely be able to avoid a lifelong drug regimen. Although, as soon as I began exercising better habits, I immediately got sick. It leaves a bitter taste in one’s mouth. But that might just be the kale.

Before I started writing this, I had in mind pithy comments to make about current events, reading I’ve been doing, and other random bits of wisdom. I would have sounded erudite and witty, I assure you. But my head is currently full of mucus. It might be better for me to have a lie-down and hope that the cold medicine doesn’t conk me out so soundly that I wet the bed. That’s life.

What’s Keeping Me Awake

Of late I’ve had an uncomfortable medical issue related to repeated heartburn. It’s gotten much worse and I have to go to the doctor. But not, of course, until I’ve googled myself into a full anxiety attack. It’s after midnight and I’m tossing and turning and just a little terrified – because so many roads lead to cancer and I’m 51 and I still have a teenager at home and I don’t want to die.

Several years ago, I had an irregular mammogram and I had to go back for another test. It turned out alright, but afterwards, I sat in my car sobbing for a good half hour. The palpable relief that I’d still be around for my kid made me crumble. After researching my latest symptoms, my insides are quaking with fear. My symptoms suggest that whatever I have, I’m about to go on a medical diagnostic journey.

Going to the doctor is like going to the gym. Getting through the door is the hardest part. BarrenTreeBWI’ve been fortunate up to this point in my life to have the luxury of infrequent visits to medical establishments. The downside is that nearly every interaction I have with medical personnel is when something bad is happening. I always leave with a new syndrome or condition, feeling much worse off than when I arrived.

When you have the luxury and fortune of good health and things start to go awry, you realize what a coward you are. I’ve never had a dental cavity – a combination of genetics and compulsive brushing. I imagine the first time I get one, I’ll become the biggest baby ever. Yet I know people who have chronic conditions, who have to line up their medications every day, and who have more replacement parts than original and they are still wildly successful at being human beings.

Here I am, though, so filled with fear and anxiety that I cannot sleep. And I know logically, it will only make things worse if I am tired. How do you find a sense of peace or calm in all of this? How do you let go of the visions of death that dance before you? How do you not tearfully hug your husband and daughter as they go out the door to have their Mondays?

On the outside, I tend to under-react in times of crisis, even as my brain is riddled with anxiety. I imagine tomorrow morning will be like any other day. I will close the door behind my family and begin to count the minutes to calling the doctor’s office. They will ask who my primary physician is and I will mumble “I don’t know”. I have a feeling that by the time diagnosis is over and I’m on some sort of treatment plan, cancer or not, I’ll know my primary physician’s name and a few specialists’ names as well.

It is my nature to distance myself, to stand outside of myself in the middle of fear. It is why I’m writing now. Writing gives my story, with all its unanswered questions, some shape, a measure of control. Or at least the illusion of it. Over the last month, I’ve been reading a lot of the classic short story writers and their bios. Quite a few of them were dead in their 40s, with hundreds of stories written. But they never felt the pride of that. They just did it until the TB or syphilis took them.

In the midst of my fears, not having been published turns out to be the least of them. Sometimes it’s good to have those kind of realizations, when all your priorities suddenly sift away, leaving only the large, important things. For me, it will always be my family.

canstockphoto1218783I’d been feeling depressed over the last month or so – the side effect of a long winter and the loss of my mother-in-law a few months ago. I’d been wallowing in self-pity about my inability to be a prolific writer. Sporadic writer is more like it – whinging on about being a caregiver of sick cats, of having no sense of self beyond the drudgery of laundry and dishes and ferrying people about. And how it felt like such a big deal to allow my brown hair to be sheared off to reveal the silvery gray beneath a few weeks ago. I am a little ashamed about that now. How trivial and superficial my anxieties can be.

Writing this reminds me of the ability I have of finding the upside to things. This fear, this insomnia-ridden anxiety, shoves aside my petty concerns, makes me open my eyes and see what is true. I hope I remember this in the cold light of morning, watching as the clock ticks closer to office hours.